The True Colours Trust is an independent funder working in the UK and Africa.

SLOW – Surviving the Loss of your World

SLOW supports families following the death of a child. The charity provides an informal, quiet space for bereaved parents and siblings to meet with others, share their experiences, take time out or simply be with others who felt isolated in their grief.

Breathing Spaces

The Breathing Spaces Fund for parent and carer rooms in hospitals was established by True Colours in 2018. It provided grants of up to £20,000 to any hospital in the UK which had a Paediatric Intensive Care Unit to improve a parent/carer room on a paediatric in-patient ward.

Guidelines for those working with parents

King’s College London, in partnership with academics from the Universities of Leeds and York, has developed a suite of new resources to support the healthcare, charity and academic sectors to engage safely and responsibly with parents of seriously ill children and bereaved parents.

Island Hospice and Healthcare, Zimbabwe

Island Hospice and Healthcare provides palliative and bereavement care services including pain management, symptom control services and counselling. True Colours is supporting a project working in the province of Mashonaland East, integrating palliative care into health systems.

The Palliative Care Association of Malawi

True Colours have been working with partners in Malawi since 2011 on a piece of work designed to integrate palliative care into the public health system.

Heart n Soul

Heart n Soul provides opportunities for people with learning disabilities and autistic people to explore their talents, make high quality work, access new opportunities and influence change in their own lives and the lives of others.

National Lead Nurse in Neonatal Palliative Care

The Neonatal Palliative Care project is led by Alex Mancini, the Lead Nurse in Neonatal Palliative Care. The goal is to ensure consistent access to high quality neonatal palliative care for babies and their families in the UK.

Jessie May

Jessie May is an innovative service with a reputation for providing exceptional palliative care and support to children with life-limiting conditions, and their families, in their own homes.

African Palliative Care Association

The African Palliative Care Association’s mission is to ensure palliative care is widely understood, integrated into health systems at all levels and underpinned by evidence in order to reduce pain and suffering across Africa.

Sibs

Sibs is the UK’s leading charity supporting siblings of disabled adults and children. Sibs recognises that children with a disabled sibling often have support needs of their own and provides information and support for siblings and training for parents and professionals.

Changing Places

The Changing Places consortium campaigns for fully accessible toilets to be installed in public places. Over 250,000 people in the UK need Changing Places toilets in order to access days out, public places, attend work or do other daily tasks.

The Children’s Palliative Care Project with Heard

True Colours are working with Heard to change the way children’s palliative care is talked about. This project works directly with families who have experienced children’s palliative care, professionals working in the sector and the media.

Childhood Bereavement Network

The Childhood Bereavement Network is the hub for those working with bereaved children, young people and their families across the UK.

DeafReach/Sign Health Uganda

DeafReach (formerly Signal) supports people who are Deaf or who have a hearing impairment. Its work in Uganda improves access to education for children who have a hearing impairment, many of whom miss out on school due to their disability.

True Colours Data Champion

Accurate and useable data on disabled children and young people is crucial to allow us to understand where disabled children are, their needs and what services they are accessing.