Further funding agreed for the True Colours Chair in Palliative Care for Children and Young People

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Biennial Review of the True Colours Chair in Palliative Care for Children and Young People

True Colours’ Decisions and Next Steps

Summary

The Trust commissioned Professor Sir Al Aynsley-Green (Sir Al) to undertake a Biennial Review of the True Colours Chair in Palliative Care for Children and Young People.  The Chair is based at the UCL Institute of Child Health/Great Ormond Street Hospital within the Louis Dundas Centre for Children’s Centre for Children’s Palliative Care.  The Review was a condition of the Trust’s original three year grant; its aim was to ascertain whether the Chair was making a significant impact on the sector to inform the Trustees’ decision for a two-year extension of funding.

The Review’s terms of reference were based upon the Chair’s original job description.  Sir Al completed the review in September 2012.

In summary, Sir Al’s review praised the Chair’s work to date, stating that Professor Bluebond-Langner ‘has built on her reputation for the quality of her research, with clear evidence for productivity, impact and, above all, benefit to children and their families.’

True Colours Next Steps

On the basis of the review, the Trustees have now approved further funding of £500,000 over two years for the True Colours Chair. They have also approved a supplementary grant towards the Unit’s running costs in 2012/13, 2013/14 and 2014/15.

It was clear from Sir Al’s report that there had been some confusion over the length of True Colours’ funding expectation.  The Trustees would therefore like to confirm their original expectation to ensure the Chair is funded for a total of ten years, subject to progress and satisfactory reviews at appropriate points.

Sir Al’s report also made a strong recommendation for the Unit to have a Strategic Plan and the Trustees have asked the Chair to write one.  There will be a single strategy for the Chair and the academic Unit which will express the Unit’s vision and outline what will be achieved, and how, over the next three to five years with the available resources.  It will include key measurable targets.

The Chair will be assisted in this process by Professor Sir Alan Craft; he was the Chair of the original Steering Committee which established the post.

The Strategic Plan will be based upon the four objectives agreed by the Chair and Unit’s founding bodies.  In summary these are:

I.             Developing an evidence base & delivering research relating to children’s palliative care

II.            Development & delivery of training and education in children’s palliative care

III.           Raising the profile of children’s palliative care

IV.          Working with international partners to strengthen the global voice for children’s palliative care

The draft Strategic Plan will be presented to key stakeholders at a meeting in February and the whole exercise will be complete by the end of the first quarter 2013, which will lay a firm foundation for the work going forwards.

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