Photo: Alex Mancini, Pan London Lead Nurse for Neonatal Palliative Care


© Helen & Douglas House Hospice

Lead Nurse in Neonatal Palliative Care Nurse at Chelsea and Westminster NHS Foundation Trust

The Trustees of The True Colours Trust are delighted to announce the appointment of Alexandra (Alex) Mancini as the UK’s first Lead Nurse in Neonatal Palliative Care at the Chelsea and Westminster NHS Foundation Trust (the Project). The Project is being co-funded by the Chelsea and Westminster NHS Foundation Trust (Chelsea and Westminster), CW+ (formerly the Chelsea and Westminster Health Charity) and The True Colours Trust.

The Project is the first of its kind. It will provide strategic, inspirational and professional senior nursing leadership in the development and delivery of multi-disciplinary neonatal palliative care services, initially across the five London networks with a view to a national roll-out over the Project’s five years. The Project is needed to ensure equity of care for babies and families across England.

The Project will facilitate expert and autonomous nursing care and the provision of support to neonates, families and unborn babies who require palliative and end of life care. The Lead Nurse will work in collaboration with multi-disciplinary teams, both in the hospital and in the community, in order to achieve the highest standards of optimal care for this group of babies and families. This will involve teaching and supporting the early identification of eligible babies, and ensuring they are being cared for in the most appropriate environment.

The Project will run for five years from February 2015 to February 2020, after which time funding will be found from statutory sources.

The Lead Nurse will transform the provision of palliative care for neonates, families and unborn children in London, and beyond. Chelsea and Westminster has been at the forefront of developments in neonatal palliative care in England, including publishing the country’s first evidence based guidelines for the management of palliative care on neonatal units in 2014; Alex Mancini has been integral to this work and we are delighted to announce her appointment to this new and exciting role.