Photo: Children drawing courtesy of Sibs


Reports and Publications

Understanding the needs of disabled children with complex needs or life-limiting conditions. What can we learn from national data?

In 2017 True Colours and the Council for Disabled Children commissioned Anne Pinney to carry out a thorough review and analysis of the national data on disabled children with complex needs or life-limiting conditions. Further information can be found here and the report is available to download below.

Understanding the needs of disabled children with complex needs or life-limiting conditions. What can we learn from national data? (PDF)

A Really Practical Handbook of Children’s Palliative Care

Justin Amery’s handbook is available for purchase or download as an Ebook directly from Lulu.com, or is available to download below.

A Really Practical Handbook of Children’s Palliative Care (PDF)

Life to the Full

In 2015 True Colours commissioned Demos to undertake research on disabled children and children with palliative care needs in the UK. The report is available to download below.

Life to the Full (PDF)

Report from UNICEF and The International Children’s Palliative Care Network (ICPCN) (2013)

UNICEF and ICPCN’s report is available to download below.

Photo: Children and carers taking part in a music therapy session courtesy of Haven House Children’s HospiceAssessment of the need for Palliative Care for Children. Three country report: South Africa, Kenya and Zimbabwe (November 2013) (PDF)

Waterloo Coalition: Checklist to facilitate the integration of palliative care into the public health system (2012)

The checklist and report and are available to download below.

Waterloo Coalition – Checklist for integrating palliative care (2012) (PDF)

Waterloo Coalition – Key lessons from programmes in Kenya and Malawi (2012) (PDF)

True Colours’ Annual Reports

True Colours’ Annual Reports are available to download below.

Annual Report April 2017 (PDF)

Annual Report April 2016 (PDF)

Annual Report April 2015 (PDF)

Annual Report April 2014 (PDF)